Searching for medical advice… online

In July, 2010, we were blessed with our fourth child. I remember snuggling with her after she was born, and teasingly referred to her as our little Rudolph  “ thinking that she had a funny light red bruise on the tip of her nose as a result of her labor/delivery. Our amusement quickly turned to worry when the bruise  started to get darker until it was deep purple. Bruises are supposed to heal, right?

Are you searching for answers about your kids health?       Read the rest of Kora’s story on the Million Moms Challenge Website.

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9 Comments

  1. What your kiddo has is a hemangioma (sp??) it’s a cluster of blood vessels, and will eventually fade out. My son had a large, raised one on the back of his head, it got very big and puffy, however, he is 5, and it’s gone down so so much, and has faded to skin color. His ped said that by age 5 it should be completely gone. He is 5 now, and you can’t even really tell it’s there. No worries, it will fade- and she is so so beautiful! Congratulations!!

  2. That is true if the growth were a strawberry or surface hemangioma. Kora had/has a Cavernous one, the kind that has a swelling below the surface of the skin. We were able with medication to recess the growth. She still has the “strawberry”, but no longer the bulb. We hope the strawberry will recede as she ages (although we were told by specialists that her type may not resolve completely on its own)

  3. My daughter has a hemangioma also, hers is on her chin and grew really fast the first couple months until her dermatologist put her on a medication for it. They say it will go away in time. It used to really bother me when people asked about it, but now I’m so used to it.

  4. i had a set of twins in Sept 09 & we noticed lil red bumps on one of their chins that we thought at first was just a rash! Over time it didnt go away & i kept asking my Dr. (then we changed shortly after) to let us talk to somone about it who specialized in this to see what it is & what we were dealing with! after they “bumps” started to get bigger i finally told her i want to see someone & if you dont recommend us i’ll find another way….she sent us to a plastic surgery & he contacted a WONDERFUL DR. in Charleston, SC Dr. Marcelo Hochman! We had a consult with him & he confirmed they were Hemangioma’s so right away he started treating her with laser treatments to stop the growth. We had to travel atleast once or twice a month for 6 or 8 months on a 3 hr car ride for a 5 minute appointment! I an say i WOULD do it all over again if i had to in a heart beat!! He has also done 3-4 reconstructive surgeries on her chin & we still are not done yet! So just to let everyone know who comes across this board yes these things can go away on their own but SOME do NOT!!! Always get a second opinion if you feel it needed!! my daughters turned 2 this past Sept. & she had her last surgery in July 09 & she got a yr break to see what would happen with them! we go back next June to see what will happen if she needs more surgery or if she needs more time for them to heal on their own! looking at her this very minute across the room i cant even tell she has or ever had anything wrong with her chin! she has a little scar & still some “raised” spots but even before any of this she was still my beautiful girl!! Your daughter is so precious & i hope the best for her! Look up Dr. Hochman he is the BEST in the world (& not just by me but literally). He has a website you can visit for for more info. i cant say enough about this man honestly!!! http://www.hemangiomatreatment.org

  5. Our son has a hemangioma that presented about 2 weeks after birth. It is not cavernous (see PP), but IS very close to the outer corner of his eye. We were sent to a specialist (opto) to make sure it was not effecting his vision. Once that was ruled out, we decided to do nothing but wait and see how much it grew. Two options are: steriod treatments, and beta blockers. Another much more invasive approach is surgery. We took the position that if it did not hinder his ability to function normally, then we would do nothing. I believe as high as 70% completely go away on their own by the age of 5, and 90% by age 7. The natural progression for this tangled cluster of blood vessels is: growth, static, and involution. It will look angry and red for the growth phase and can be quite bulbous. They do not hurt the child in the least, however can become very irritated if in an area that is rubbed often such as a waistband, torso, diaper area etc. When it becomes static, it just does nothing. It may start to look less red and angry, or even start to cloud over a bit turning grey on the surface (skin returning to the “normal” position), during involution the cluster of vessels literally starts to unknit, and the growth recedes. Once in a while, if the growth was especially large there may be some excess skin that would need to be removed. Caution should be taken, and please do your research before agreeing to beta blockers (a heart medication, in which case your child would need to be under the care of a pediatric cardiologist to monitor), in my opinion surgery for something that has a 90% chance of going away on its own is just not an option. Our son is 15 months now, his stopped growing and is about the size of 1/2″ diameter. It is beginning to cloud over. It is not yet receding. Yes people ask about it. It is a good learning lesson, to be honest and patient and just explain/educate what he has. Children especially are very interested in it, and very honest/vocal in asking what it is. Again, we look at it as a learning opportunity. It is not life threatening, it is a small mark that will do away on its own, leaving only a little more character in those that have cared for, and encountered it. Best to you and your sweet little one! side note: in my research on it I found an interesting tidbit in that it USED to be common practice to remove these once presented. But during WW2, when there was a shortage of surgeons, they had to prioritize surgeries. So these went untreated. Of course that is one of the ways they learned that most go away on their own naturally, and began real study of these. In fact, they realized there was often MORE scaring associated with trying to surgically remove them. cheers!

  6. This may sound weird, but you could look into Lugol’s Iodine (used topically). If you are interested in more information. Please e-mail me. It would be an inexpensive solution.

  7. I would just like to say….we have had 8 children and 6 have had some form of these “raised blood vessels”..and one daughter had one on her upper lip..started going away by the time she was 3..a couple had them on their hips…all gone…and a couple of the boys in the back of their head..which also disappeard…..surgery was not offered at the time when we had our children..and i am thankful…we have grandkids now..all beautiful

  8. We discovered at 4 months that our son had a hemangioma in his right eye socket. It was a very scary road and we ended up getting three opinions before deciding to be patient, pray, and wait. DO YOUR RESEARCH. Particularly if you’re considering ANY treatment, get as much information as possible! In doing my research, I met a woman whose young daughter had CANCER in her eye socket. She actually told me they had WISHED her daughter had the issue our son did that I spent hours crying over. Keep things in perspective. Thank God, her cancer is currently in remission and our son’s hemangioma started to go away around 12 months.

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