Many of you may have noticed my love for crafts involving Rory’s hands and feet. Rory is my first and currently only child, so I naturally love documenting her growth in any way I can. My love for those little feet and creating crafts using her feet comes with a different reason.
Rory was born with a 1 in 300,000 birth defect called Congenital Femoral Deficiency, or CFD. It is where one limb doesn’t grow as much as the other. In our case, it is her little right leg. (for more information on her condition and treatment please visit her website )*
I started doing feet art when she was 3 months old. Since her right leg is smaller on the right side- her right foot is also smaller and I wanted to see just how much smaller. I broke out the paints. I dipped her feet in the paints and placed her sweet feet on the paper. She loved the paint on her feet and she smiled the whole time. So, I now love finding new ways to make Rory’s feet (and hands) into animals and objects.
Her condition has completely consumed my life. Although I hid it from most people as long as I could, once she started wearing shoes it was impossible to hide the large shoe lift on her one right shoe (her current shoe lift is 6 cm).
For me trips to the store are no easy task. I am stopped at least once per store and asked about her shoe. I also receive comments (my favorite include how cute the little Lady Gaga shoes are, and how I must really like platform shoes if I am putting them on my baby) and Rory gets quite a few stares.
To make this easier for me to explain to people and for myself (and I encourage other mothers to do the same), I made little business cards about her condition and refer people to Rory’s website. Now, whenever someone approaches me (or can’t seem to stop staring) and I am short for time, I hand them a card and say “She has a rare birth defect called Congenital Femoral Discrepancy where her right leg doesn’t grow as much as her left leg does. Here is a link to her website, please feel free to visit it for more information.”
If you are interested in making your own cards, you don’t have to have your own personal website, you could put a link that can help describe your child’s condition, or just type a little paragraph about what it is for people to read. I know for me, some days I do not want to see people stare at her shoe or hear anyone talk about the little “Herman Munster shoe,” and these little cards have saved me a lot of time (and tears) in explaining her condition.Powered by Sidelines