Many of you may have noticed my love for crafts involving Roryâ€™s hands and feet.Â Rory is my first and currently only child, so I naturally love documenting her growth in any way I can.Â My love for those little feet and creating crafts using her feet comes with a different reason.
Rory was born with a 1 in 300,000 birth defect called Congenital Femoral Deficiency, or CFD.Â It is where one limb doesnâ€™t grow as much as the other.Â In our case, it is her little right leg.Â (for more information on her condition and treatment please visit her website )*
I started doing feet art when she was 3 months old.Â Since her right leg is smaller on the right side- her right foot is also smaller and I wanted to see just how much smaller. Â I broke out the paints.Â I dipped her feet in the paints and placed her sweet feet on the paper.Â She loved the paint on her feet and she smiled the whole time.Â So, I now love finding new ways to make Roryâ€™s feet (and hands) into animals and objects.
Her condition has completely consumed my life. Â Although I hid it from most people as long as I could, once she started wearing shoes it was impossible to hide the large shoe lift on her one right shoe (her current shoe lift is 6 cm).
For me trips to the store are no easy task. Â I am stopped at least once per store and asked about her shoe.Â I also receive comments (my favorite include how cute the little Lady Gaga shoes are, and how I must really like platform shoes if I am putting them on my baby) and Rory gets quite a few stares.
To make this easier for me to explain to people and for myself (and I encourage other mothers to do the same), I made little business cards about her condition and refer people to Roryâ€™s website.Â Now, whenever someone approaches me (or canâ€™t seem to stop staring) and I am short for time, I hand them a card and say â€œShe has a rare birth defect called Congenital Femoral Discrepancy where her right leg doesnâ€™t grow as much as her left leg does.Â Here is a link to her website, please feel free to visit it for more information.â€
If you are interested in making your own cards, you donâ€™t have to have your own personal website, you could put a link that can help describe your child’s condition, or just type a little paragraph about what it is for people to read.Â I know for me, some days I do not want to see people stare at her shoe or hear anyone talk about the little â€œHerman Munster shoe,â€ and these little cards have saved me a lot of time (and tears) in explaining her condition.